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Fibromyalgia
Last comment by HMJC 1 year, 3 months ago.

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I have Fibromyalgia, and I wanted to see if anyone else in this community suffered from this cruel illness.

If so, you know it is one of the most misunderstood conditions in existence. It comes with constant pain, fatigue and, most often, depression. However, it is invisible so people are often dubious about it.

If you have Fibro and you need support and/or knowledge, you are invited to join my Facebook page, "Fibro For Us."

We currently have 1,163 members and we share, teach and console each other. Such sites are important because the spectrum of conditions are so wide that each person faces a slightly different variation of conditions.

You may think no one else suffers like you do. However, you have a Fibro family who understands.

https://www.facebook.com/FibroForUs

On my website, I have articles and humor about Fibromyalgia

http://richardmansel.com/category/fibromyalgia-2/

http://richardmansel.com/fibro-cards/

If you suffer from Fibro, you are in my prayers.


Latest Activity: Aug 16, 2013 at 11:03 AM


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JimmyMack commented on Friday, Aug 16, 2013 at 15:17 PM

Well Richard, if Fibromyalgia is what I think it is, then I have much empathy for you and those who suffer with it. I believe that there is no known cure, is that right? Except maybe lung transplant. I grew up with three bouts of pneumonia, chronic asthma and bronchitis along with numerous bouts of pleurisy. I KNOW what it feels like to be conscious and unable to breathe. Those with what you have experience that feeling constantly; drowning in their own fluids and phlegm. A horrible horrible disease to endure.

I am so sorry and I will enter you into my prayers.

Richard Mansel commented on Friday, Aug 16, 2013 at 15:30 PM

Fibromyalgia is a neurological condition that basically means that there are errors in the pain process in the body. Most everything causes us a lot of pain and fatigue. I lost the ability to walk and had to re-learn it. Thanks for your concern and prayers.

Richard Mansel commented on Friday, Aug 16, 2013 at 15:33 PM

We have problems with our arms, hands, legs, feet, back, neck, etc. We hurt all the time, and we have flashes of pain throughout the day above that. Fibro folks also have Fibro Fog, which involves a brief memory loss and confusion.

JimmyMack commented on Friday, Aug 16, 2013 at 17:12 PM

Should have googled first. Mixed up fibro-cystic disease with fibro myalgia.

Both terrible ailments.

Richard Mansel commented on Friday, Aug 16, 2013 at 18:59 PM

Your wife has my sympathy. Cymbalta is a very common treatment. I even went to the Mayo Clinic and wasn't given the proper diagnosis.

Richard Mansel commented on Friday, Aug 16, 2013 at 20:25 PM

Dr. Victor Rosenfeld in Savannah is my neurologist who specializes in Fibro. He diagnosed me.

Richard Mansel commented on Friday, Aug 16, 2013 at 20:44 PM

Once again, I am happy that she's getting help. If I can be of any assistance, let me know.

Richard Mansel commented on Friday, Aug 16, 2013 at 22:39 PM

Thank you! One day at a time.

Graeme245 commented on Saturday, Aug 17, 2013 at 10:05 AM

I know your pain Richard. I've been living with Fibromyalgia coupled with Lupus for over 30 years. In my case Lupus precludes my ability to take any of the popularly perscribed medications for Fibro so it's a case of lifestyle management. I was fortunate early in my diagnosis period to work with a sympathic therapist & pain manager who helped with dietary choices/meal planning. Speaking for myself, probably 'attitude' has been the most important thing in dealing with the 'pain'. I don't dwell on it, if I do, I hurt more & deeper. If I grin & bear it, giving my best effort, screw what the rest of the planet thinks, I know I've beaten the Demon Fibro for the day. Realistically, you & I know that best effort & battle can be simply getting dressed...

Welcome to the domaine of bored middle-aged women seeking drugs. It has only been since men & seemingly healthy young women have presented with symptoms that fibromyalgia has been taken more seriously throughout the medical community. (please forgive the snark) Longterm Fibro patients have done more than their fair share of 'suffering' to be taken seriously within the medical community. Best of luck with the websites!

Richard Mansel commented on Saturday, Aug 17, 2013 at 17:24 PM

Thanks for the story. I'm sorry to hear you have suffered so long. I usually deal with the pain better than I do the wicked fatigue. There are a growing number of men who are being diagnosed, and they were upset with Dr. Oz because he only mentioned women having Fibro on his show. However, as you know, it is all incremental. I was just thrilled that he did a show about Fibro because I can see the bigger picture of validation.

Thanks for the kind words and encouragement! Hope you have a great weekend!

MikeLongCounty commented on Sunday, Aug 18, 2013 at 14:57 PM

And let me interject this into the conversation, in spite of the difficulties that Richard has endured, he still continues to work hard and is and always has been a productive member of our community. His writing skills are obvious in here, but more obvious at the online magazine Forthright and in his published book The Most Important Question. And most importantly I am proud to know him.

Richard Mansel commented on Sunday, Aug 18, 2013 at 15:09 PM

Thank you, Mike! That is very kind of you. I try to stay as productive as I can. I am proud to call you my good friend, Mike.

HMJC commented on Monday, Aug 19, 2013 at 12:10 PM

I am a disabled veteran with a below knee amputation on my right leg. The intial injury did not take the leg right away and they ended up doing 13 surgies to try and save it. Amputee's suffer from "phantom" pain; we still think the limb is there and it still hurts. This was exacerbated by the multiple suguries that have set my nerves on "fire" Unfortunetly the only thing that really works for me is pharmocuticals. Lyrica is pretty good but can make you retain water. The VA had me on Nuerontin which does increase weight gain and was not very effective for me. Elivil is another choice but can make you sleepy. at the end of the day I take a low dose of MS.Contin extended for a 12 hour period 2x a day and hydrocodone as needed. Frankly I made a decision; when I dont take the afore mentioned I am in constant pain and at night sometimes feel like the injury is happening al over again. When I dont take my medicine I am not as mobile which makes me pretty much useless around the house and do not feel like venturing out much. When I do take my medicine in accordance with the dosage and the labeling my qulity of life is much improved. I am not "stoned" or out of it and it still hurts some but not to the point to where I just want to do nothing. Lastly there is a differeance between dependancy and addiction. Is my daily pain reduced with my medications? yes. Do I have to take them to subsist? no. I made a personal choice to improve my qulity of life and my Families in the process. At the end of the day thats what it comes down to, choice. It is something you need to discuss with your Dr. and your loved ones and find what works for you. Just dont be silly and say " I dont need that crap to get by" Because you know what? you dont, but it just might help...


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